PPI Toolkit for Network Sites

Welcome to the PPI Toolkit for Site/Scientific Staff involved in PPI activities within 3CTN. 3CTN’s leadership believes that infusing PPI in all levels of 3CTN is very important to help the Network achieve its goals and objectives. The potential positive influence of PPI on Network goals and objectives could include:

• Increasing the number of adults and children enrolling in academic clinical trials
• Increasing the number of centres offering academic clinical trials across the country
• Improving the efficiency and effectiveness of the management of clinical trials to complete trials in a timely manner
• Streamlining processes such as training of trial personnel, ethics review and specimen collection and storage nationally
• Demonstrating the positive impacts of this work on the Canadian health system

We hope you find the tools and information on this page helpful to not only understand what PPI is, but also how to embrace all that PPI has to offer this important pan-Canadian initiative.

3CTN Tools

• Patient Representatives Orientation Toolkit:
  • Patient Representative Role Description (EN) (FR)
  • Patient Representative Responsibilities Matrix (EN) (FR) 
  • Patient Representative Onboarding Orientation Checklist (EN) (FR)
• Framework of Community Representation on Health Research Committees: A Practical Tool to Assist Organizations Wanting to Incorporate the Voice of the Public
• PPI Reference Tool

Further Reading

• How to write good lay documents and lay summaries:
  • NIHR Involve Resources 
  • NIHR Involve Plain English Summaries 
  • Clinical and Translational Radiotherapy: How to write a good lay summary
  • CIHR Jargon Buster glossary 
• Progressing Patient and Public Involvement in Healthcare Improvement

Helpful Links

• It Starts with Me Campaign